tag:blogger.com,1999:blog-3735620326044265933.comments2023-06-29T02:06:12.371-07:00Pamela N RedPamela Morganhttp://www.blogger.com/profile/13009280679111098479noreply@blogger.comBlogger301125tag:blogger.com,1999:blog-3735620326044265933.post-42959416152659139312016-06-16T10:10:23.233-07:002016-06-16T10:10:23.233-07:00Raynaud's is tricky and hard to regulate. Keep...Raynaud's is tricky and hard to regulate. Keeping my feet elevated helps with the circulation. I can't take really cool temperatures so when I'm in a restaurant or building that keeps the air conditioning really low I have a hard time. I'm cold natured so it has to be pretty warm for me to be uncomfortable. I keep my thermostat at 77 in the summer months which would be too warm for some. Pamela Morganhttps://www.blogger.com/profile/13009280679111098479noreply@blogger.comtag:blogger.com,1999:blog-3735620326044265933.post-47406514835797987982016-06-12T23:36:50.311-07:002016-06-12T23:36:50.311-07:00I just had to comment. I have hypohidrosis but I d...I just had to comment. I have hypohidrosis but I don't sweat when hot, only when I get nervous/embarrassed do I actually produce any sweat, which really isn't helpful at all. What jumped out at me though was that you also have Raynaud's. I have it too and I've not really found anyone who has both. I am so sorry you have both conditions. How do you balance staying cool for your anhidrosis and staying warm with the Raynaud's. I'd love any advice you could share. Icyminaretahttps://www.blogger.com/profile/13546636373595978686noreply@blogger.comtag:blogger.com,1999:blog-3735620326044265933.post-58787609969928537852015-05-04T15:39:03.752-07:002015-05-04T15:39:03.752-07:00Grace, I haven't heard of erythromelalgia. My ...Grace, I haven't heard of erythromelalgia. My feet burn when I get overheated and I'm wearing shoes. My hands never burn but hurt when they get too cold. Pamela Morganhttps://www.blogger.com/profile/13009280679111098479noreply@blogger.comtag:blogger.com,1999:blog-3735620326044265933.post-13703584963541590562015-05-03T09:56:44.771-07:002015-05-03T09:56:44.771-07:00Hi Pamela!
I also don't sweat and get overhe...Hi Pamela! <br /><br />I also don't sweat and get overheated often. I was very interested in your comment about burning feet - because that is the number one worst symptom of anhidrosis that I experience :( The red, burning feet have been diagnosed as erythromelalgia. I don't know if I 100% agree with the diagnosis, because my red feet don't occur when my body temperature is normal or cool. <br /><br />I just wanted to know whether you A) also get red, hot fingers when you're hot, and B) how long have you experienced the red feet? I hope my problem is just that I don't sweat - and not anhidrosis AND another rare condition! <br /><br />Thanks so much for posting about this issue. People get jealous that I don't sweat, but it's terrible!Gracehttps://www.blogger.com/profile/17666828426283773413noreply@blogger.comtag:blogger.com,1999:blog-3735620326044265933.post-28349109637479306632015-01-05T11:27:31.663-08:002015-01-05T11:27:31.663-08:00Beth,
I don't have Sjogren's Syndrome, my ...Beth,<br />I don't have Sjogren's Syndrome, my eyes don't dry out and my mouth produces saliva normally. I also don't have some of the other symptoms. <br /><br />I hope the medication helps you. Good luck.Pamela Morganhttps://www.blogger.com/profile/13009280679111098479noreply@blogger.comtag:blogger.com,1999:blog-3735620326044265933.post-67221800310776208372015-01-04T10:52:33.137-08:002015-01-04T10:52:33.137-08:00Hi, my name is Beth.
I suffer from hypohidrosis, ...Hi, my name is Beth.<br /><br />I suffer from hypohidrosis, which is similar to anhidrosis, only I can sweat, albeit minimally. I totally get what it's like to overheat. I know what you mean when people think you are lucky. We aren't! It sucks to not be able to play with your kids because it's too hot. I felt like a failure in the Army because I'd overheat on runs and had to stop to cool down. Everyone thought I was just being lazy. They didn't get that I was just trying to not die!<br /><br />My hypohidrosis is caused by Sjogren's Syndrome. Sjogren's also makes me have dry eyes and a dry mouth, but definitely the worst thing is to not sweat!!!<br /> I will sweat just enough to feel moisture, but it is not enough to cool my body and once my temp rises past 101, which doesn't take long, I stop sweating completely, and run the risk of heat stroke. <br />I am going to speak to my doctor about starting me on pilocarpine, to see if that can help in my situation.<br /><br />The reason I bring this up is that you said you have Raynaud's, which is also common in Sjogrens. If you also suffer from dry eyes, and/or dry mouth, I would encourage you to get tested, as there may be treatments for your predicament. I wish you luck, and I hope to hear back from you.Beth, from Menifeehttps://www.blogger.com/profile/13370688213738822090noreply@blogger.comtag:blogger.com,1999:blog-3735620326044265933.post-81703481842467698402014-05-21T10:02:45.270-07:002014-05-21T10:02:45.270-07:00That's a great way to look at it. Love is a gr...That's a great way to look at it. Love is a great thing and I hope that everyone has a chance to experience it at least once. Pamela Morganhttps://www.blogger.com/profile/13009280679111098479noreply@blogger.comtag:blogger.com,1999:blog-3735620326044265933.post-4711245183425887892014-05-20T06:56:45.219-07:002014-05-20T06:56:45.219-07:00I like Sylvia Browne's philosophy when it come...I like Sylvia Browne's philosophy when it comes to soul mates. She says ours is on the Other Side watching over us waiting for us to return home.Peg Colehttps://www.blogger.com/profile/00234951891162510877noreply@blogger.comtag:blogger.com,1999:blog-3735620326044265933.post-54261810548603708722013-09-18T15:03:38.747-07:002013-09-18T15:03:38.747-07:00I agree, Christy, it's been around for many ye...I agree, Christy, it's been around for many years and there will always be people that enjoy reading it. Pamela Morganhttps://www.blogger.com/profile/13009280679111098479noreply@blogger.comtag:blogger.com,1999:blog-3735620326044265933.post-82766206632576930852013-09-18T11:29:54.841-07:002013-09-18T11:29:54.841-07:00I think there will always be a place for paranorma...I think there will always be a place for paranormal fiction. As you explain, the writer that said it was slowing down just likely slowed down in the area of new ideas.Christy Bhttps://www.blogger.com/profile/11038079735340440318noreply@blogger.comtag:blogger.com,1999:blog-3735620326044265933.post-59191305856231614622013-09-12T07:43:45.181-07:002013-09-12T07:43:45.181-07:00Sorry to hear that Nick. We just have to do what w...Sorry to hear that Nick. We just have to do what we can and avoid anything in extreme heat. <br /><br />Drinking lots of water will help keep you from dehydrating but you still won't sweat. Keeping hydrated is important even though it isn't released through our pores.Pamela Morganhttps://www.blogger.com/profile/13009280679111098479noreply@blogger.comtag:blogger.com,1999:blog-3735620326044265933.post-62089787965307226872013-09-11T14:20:43.603-07:002013-09-11T14:20:43.603-07:00Hey its me Nick again. I was prohibited from tryin...Hey its me Nick again. I was prohibited from trying out for baseball last year and I wasn't allowed to play football this year. Wanted to add that i have ectodermal dysplasia. Over the summer when I trained for baseball, I would soak my shirt and you were right, that sort of did the trick. I've been trying to deal witg this my whole life, and it has been hell. I can't play baseball in college because they won't take a player of my experience, I can't play football and I quit basketball, which I was very good at, because of it. I bowl now and one of my coaches is friends with some people at Florida, so I may bowl there on a full ride. The problem still remains as it gets super hot up there. I'm assuming there are no cures for my condition, so I'll just continue to soak my shirt. Do you know if drinking a lot of water will make a noticeable difference? Thankyou.Nickhttps://www.blogger.com/profile/06423855262409266066noreply@blogger.comtag:blogger.com,1999:blog-3735620326044265933.post-81732104896878762192013-07-20T13:17:12.199-07:002013-07-20T13:17:12.199-07:00Eslee, the heat is what bothers me. I have noticed...Eslee, the heat is what bothers me. I have noticed that when I've been exercising (usually indoors on my treadmill) my feet will burn and feel like they are on fire. I believe this is because of the inability to sweat. I have used athletic sandals or make sure the room is cool and fans on while exercising. <br /><br />My biggest symptom is dizziness and sometimes nausea but as far as pain my feet burning when wearing tennis shoes and socks is the only pain I can recall. I am very careful not to get overheated since it can be dangerous. Pamela Morganhttps://www.blogger.com/profile/13009280679111098479noreply@blogger.comtag:blogger.com,1999:blog-3735620326044265933.post-40439659267702018702013-07-19T11:05:54.814-07:002013-07-19T11:05:54.814-07:00So good to read your post. In ten years I've n...So good to read your post. In ten years I've never talked to anyone else who has this. <br /><br />I have one question I'm dying to ask someone with anhidrosis. Do you only get symptoms related to the heat, or does overheating cause you additional pain and/or disability? I have an additional neurological condition, and the two team up against me. I have never fully known which symptoms go to which disease. I am endlessly curious about the lives of others with this condition and how it affects them. Would love to chat with anyone who has it!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3735620326044265933.post-39019119240966171972013-06-02T08:09:58.678-07:002013-06-02T08:09:58.678-07:00That's another possibility I hadn't though...That's another possibility I hadn't thought of. I do think each person that comes into our lives is a learning experience whether they are good or bad. <br /><br />Thanks for reading. :)Pamela Morganhttps://www.blogger.com/profile/13009280679111098479noreply@blogger.comtag:blogger.com,1999:blog-3735620326044265933.post-14556481174043063622013-05-30T14:54:11.311-07:002013-05-30T14:54:11.311-07:00This was a very interesting read. I have often bee...This was a very interesting read. I have often been fascinated by the thought of having just one person in this world who was meant for me, my other half. But in my own research about the topic of soulmates, some believe you can have more than just one. Each person is meant to be a part of our life in some way, some to teach us lessons and help us to grow. Some are meant to be a part of our lives for just a certain period of time, and then leave our lives when their time with us is done. So perhaps soulmates DO exist, but for some people perhaps it's not just meant to be one person.Tracie Deehttps://www.blogger.com/profile/13513547638630450579noreply@blogger.comtag:blogger.com,1999:blog-3735620326044265933.post-77338984974744312672013-04-17T06:22:43.963-07:002013-04-17T06:22:43.963-07:00Nick, the important thing is to keep hydrated and ...Nick, the important thing is to keep hydrated and when possible dampen your skin with wet towels while playing sports so you don't get overheated. <br /><br />Sweat is a natural way for our bodies to keep cool so when you don't sweat you need to replicate that with water. Pamela Morganhttps://www.blogger.com/profile/13009280679111098479noreply@blogger.comtag:blogger.com,1999:blog-3735620326044265933.post-71091274152409616022013-04-16T16:04:07.741-07:002013-04-16T16:04:07.741-07:00I don't sweat either. Never have. I played bas...I don't sweat either. Never have. I played basketball for 3 years and next year (11th grade) I will be trying football. I would love if someone had any tips to stay cool. I push myself to the limit when playing sports, but I would like to get some advice from someone.Nickhttps://www.blogger.com/profile/06423855262409266066noreply@blogger.comtag:blogger.com,1999:blog-3735620326044265933.post-79318509515507629522013-03-24T13:26:01.181-07:002013-03-24T13:26:01.181-07:00SWE, it's a weird symptom and I haven't me...SWE, it's a weird symptom and I haven't met anyone in person with it and only found a few online. I just deal with it the best I can. <br /><br />From reading other people who have tried laser and a few other remedies they ended up in worse shape sweating profusely so until they find better treatment I think I'll stick with my anhidrosis. Pamela Morganhttps://www.blogger.com/profile/13009280679111098479noreply@blogger.comtag:blogger.com,1999:blog-3735620326044265933.post-74790357007613392162013-03-24T13:21:12.978-07:002013-03-24T13:21:12.978-07:00This comment has been removed by the author.Pamela Morganhttps://www.blogger.com/profile/13009280679111098479noreply@blogger.comtag:blogger.com,1999:blog-3735620326044265933.post-681263268812020382013-03-21T05:17:23.373-07:002013-03-21T05:17:23.373-07:00It is SO good to read your post. I've spent m...It is SO good to read your post. I've spent my entire life thinking that I was just some kind of wimp. After nearly passing out at the gym the other day (after a whopping 15 minutes of not-so-strenuous work, I finally asked the great Google machine. I had no idea anhidrosis is a "thing." I have been muddling through, avoiding heat and staying hydrated for as long as I can remember. Thank you for letting me know that I'm not alone.SWEhttps://www.blogger.com/profile/05567663448928052303noreply@blogger.comtag:blogger.com,1999:blog-3735620326044265933.post-66268640105809109042012-11-28T05:19:16.628-08:002012-11-28T05:19:16.628-08:00Seymour, I have neglected this blog lately due to ...Seymour, I have neglected this blog lately due to other writing work keeping me busy. You aren't the only one who has sent me messages asking about this blog so I will try to pick it up again. <br /><br />Sometimes it is easier to talk to someone other than our spouse and being anonymous makes it easier for some. <br /><br />Good to hear from you. I hope you are doing well. Pamela Morganhttps://www.blogger.com/profile/13009280679111098479noreply@blogger.comtag:blogger.com,1999:blog-3735620326044265933.post-86593774006306149772012-11-27T07:52:07.148-08:002012-11-27T07:52:07.148-08:00I came here because a rural Oklahoma man wrote to ...I came here because a rural Oklahoma man wrote to me in Facebook, out of the blue. He got me thinking of you. I sent him the link to your blog.<br /><br />This blog has been inactive for about half a year, and that worries me a bit.<br /><br />I have noticed for some years that there are men who use images of pretty young women as avatars. If a woman uses a sexy avatar, I have trouble taking her seriously. A fair bit of the internet is made up of people seeking cybersex hookups, and some of these people are potential stalkers and other creeps. I've been on the internet since 1997, and have steered clear of trouble so far. I once thought that the cyberpervs were all frat boys and aging loner men, but now know that life is not quite that simple.<br /><br />My avatars are nothing, simply because no naughty pics exist of me. If there were, and I used them, my wife would order me to undergo counseling. Outside of one FB account using my real name, my avatar does not show me, because I am afraid of blowing my cover.<br /><br />This year, my Missus angrily revealed that she knows that I use the internet to speak my mind with some women. I said nothing, being as my stance is the same as that of the US military: "we neither confirm nor deny..."seymournoreply@blogger.comtag:blogger.com,1999:blog-3735620326044265933.post-56324562629313492592012-10-22T14:27:26.633-07:002012-10-22T14:27:26.633-07:00I haven't been on any social media sites latel...I haven't been on any social media sites lately. I've been busy here at home with other things but I still visit Facebook once or twice a week, not as often as I used to. <br /><br />I enjoyed that video although I had to search for another version because the ones you sent are banned in the US, not sure why. Pamela Morganhttps://www.blogger.com/profile/13009280679111098479noreply@blogger.comtag:blogger.com,1999:blog-3735620326044265933.post-2036992871733352402012-10-20T13:07:50.151-07:002012-10-20T13:07:50.151-07:00I am using commenting to contact you because you a...I am using commenting to contact you because you are no longer on Facebook. Delete this after reading, if you wish, because it's off topic (though I agree with your topic!)<br /><br />You love Zeppelin; I don't. We agree that Stairway to Heaven is a modern masterpiece. I invite you to discover this flamenco cover of Stairway.<br /><br />http://www.youtube.com/watch?v=Gh_M7tAdLtg<br /><br />A live version of the same tune:<br /><br />http://www.youtube.com/watch?v=RjwtbWjNSes&feature=relatedseymournoreply@blogger.com